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APERSU Newsletter -- Volume 3, Issue 1
Summer 2018

Report from Co-Directors

JAJ Office1 1
Arto Ohinmaa

We are pleased to update you on recent activities of the Alberta PROMs and EQ-5D Research and Support Unit (APERSU) Team.

We would like to welcome Allison Soprovich, Maryna Derkach and Shahela Laboni to the APERSU Team. Allison started with us in January as a Research Coordinator with the APERSU Team. Allison has a background in nursing and holds an MPH from the School of Public Health. Allison's role is mainly focused on providing support to end-users as well as other APERSU service and research activities. Maryna and Shahela are the successful candidates for the APERSU/Faculty of Graduate Studies (FGSR) Graduate Student Intern Program (GSIP). Maryna is a PhD Student in the Department of Economics and Shahela is a MSc student in the School of Public Health. Both Maryna and Shahela started in May and will be with us until the end of August. Their bios are highlighted later on in this newsletter. We are grateful to the FGSR GSIP Program for funding a portion of our summer interns’ work. Welcome to all!

The APERSU Scientific Advisory Committee (SAC) has seen some changed to its membership. We would like to thank Nancy Devlin for being our inaugural Scientific Advisory Committee Chair and we would like to welcome Scott Oddie, from Alberta Health Services, as our new SAC Chair. We are pleased that Nancy will continue on as the EuroQol representative on the SAC. We also had a change in representation from the Health Quality Council of Alberta (HQCA). Thank you to Tim Cooke for serving as one of the HQCA representatives and welcome to Roland Simon.

Since our last newsletter, we've met with our Board of Directors (BOD) and SAC by teleconference. Both of the meetings were very productive and we will have face to face meetings of both committees at our 4th Annual APERSU End-User meeting.

Plans are underway for the 4th Annual APERSU End-User Meeting, which will be held on October 11 and 12, 2018 at the Varscona Hotel on Whyte in Edmonton. Details are highlighted below.

Members of the APERSU Team traveled to Budapest to take part in the EuroQol Academy this spring. We also attended the CADTH Symposium in Halifax, Can-Solve CKD Annual Meeting in Vancouver, ISPOR 2018 Conference in Baltimore and CAHSPR and CPHA Meetings in Montreal.

On behalf of the APERSU Team, we hope everyone has a great summer and is able to take time off to enjoy our beautiful province. We will update you on APERSU’s activities in December.

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4th Annual APERSU End-User Meeting, October 11 and 12, 2018

Save the date -- our 4th Annual APERSU End-User meeting will be held in Edmonton at the Varscona Hotel on October 11 and 12, 2018. We are pleased to announce our keynote speaker for the event, Elizabeth Gibbons, Senior Research Scientist, Nuffield Department of Population Health, University of Oxford. Elizabeth has extensive experience in the field of PROMs and PREMs, and we are excited to learn from her expertise in the field. We are also planning presentations and workshops focused on primary care and registry implementation in clinical care. Formal invitations will be sent soon and more details will follow in the coming months.

EMPATHY Trial Update

The Evaluation of routinely Measured PATient reported outcomes in HemodialYsis care (EMPATHY) Trial is planning implementation for September, 2018 in the Northern Alberta Renal Program (NARP) and November, 2018 in the Southern Alberta Renal Program (SARP). The Ontario Renal Network (ORN) is finishing up their PROMs pilot study and is aiming to implement EMPATHY in Spring 2019.

NARP has decided to implement the PROMs as they used to, by paper, and then have nurses manually enter the data into their local electronic medical record. Study outcome measures will be collected using REDCap on iPads, to ensure valid responses with patient anonymity. SARP will utilize iPads to collect both the PROMs and the study outcome measures. NARP and SARP have been very busy with the clinician education phase of the trial. This is very important aspect to ensure the intervention is implemented as intended.

Additionally, the EuroQol Foundation has invited us to resubmit for funding based solely on the qualitative evaluation of EMPATHY. We have begun planning the qualitative evaluation of EMPATHY and we will submit for additional funds to the EuroQol Foundation by the end of June 2018.

EQ-5D in PCNs: Successes and Challenges

We are excited to help showcase some of our important success stories relating to health-related quality of life measurement in primary care in Alberta. We are scanning the primary care environment throughout Alberta to document the context of Patient Reported Outcome Measurement (PROM) and EQ-5D use to: 1) identify the purposes of using PROMs and the EQ-5D in these settings (i.e. routine outcome measurement, program evaluation); 2) report the current implementation strategies used by Primary Care Networks (PCNs); and 3) identify the types of support needed by PCNs. In listening to these narratives, we will help highlight and report the successes and challenges of PCNs.

We are setting up in-person meetings with our current PCN end-users over the summer, and plan to highlight and share the stories at our 4th Annual End-User meeting in October 2018. The meeting will be a great opportunity for PCNs to network, learn and share experiences.

For PCNs currently not registered with APERSU or using PROMs or the EQ-5D, we have sent promotional packages. Follow ups are planned for those PCNs who have indicated they are planning to incorporate measurement in the next year.

If you have any questions about this assessment, or would like to share your PCN story, please contact Allison Soprovich by email,, or phone (780) 492-3862.

Attention Primary Care Network EQ-5D Users!

We want to hear your EQ-5D success stories! Your experience will help others better plan their EQ-5D implementation, as well as shape our future support services. We plan to share the big picture with you at The APERSU 4th Annual End-User Meeting this fall, and highlight some PCN stories. Thanks in advance for your time! If you have any questions, please email

Maryna Pic

Meet the Summer Student - Maryna Derkach

I am currently a PhD Candidate in the Department of Economics at University of Alberta. My area of focus is economic evaluation of health care technologies. Originally from Ukraine, I received my Masters Degrees in Economics from National Polytechnic University in Ukraine and Vanderbilt University in USA. I am interested in the development and application of HRQoL measurement tools that can be used in developing countries for both program evaluation and health systems assessment. I believe that incorporation of HT assessment into national health care systems can both improve people’s health and also lead to achievement of long-term targets such as productivity growth and poverty reduction.

Shahela Bio Pic

Meet the Summer Student - Shahela Laboni

Shahela is an international medical graduate and currently pursuing Master’s degree in Public Health at the University of Alberta. During her academic career in the disciplines of medicine and epidemiology she discovered her passion for working in the field of public health. Her research interests include chronic disease epidemiology and its growing global burden and effect on the quality of life. During her time in the program, she hopes to develop her knowledge translation skills and understanding of research methods in order to continue to work on her research interests. She has volunteered for the Alberta Policy Coalition for Chronic Disease Prevention (APCCP) to aid in promoting and improving public health issues. When she’s not in school, she loves to cook, bake, visit museums and new places.

APERSU Publications

Crick K, Al Sayah F, Ohinmaa A, Johnson JA. Responsiveness of the anxiety/depression dimension of the 3- and 5-level versions of the EQ-5D in assessing mental health. Quality of life Research 2018;27(6):1625-1633. PMID: 29516342.

McClure NS, Al Sayah F, Ohinmaa A, Johnson JA. Minimally Important Difference of the EQ-5D-5L in Adults with Type 2 Diabetes. Value in Health 2018.

APERSU Presentations

Johnson JA, Patient report outcome measures in pharmacotherapy research. Canadian Society for Hospital Pharmacists Professional Practice Conference, Toronto, ON, February 4, 2018 (Invited Talk).

Jin X, Al Sayah F, Ohinmaa A, Marshall D, Johnson JA. EQ-5D-5L vs. EQ-5D-3L: A cross-sectional comparison of measurement properties among total hip and knee replacement patients. 3rd Annual EuroQol Academy meeting, March 5-7, 2018, Budapest, Hungary (Poster Presenation).

Al Sayah F, Ohinmaa A, Johnson JA. Can the EQ-5D-3L predict post-hospitalization healthcare use and outcomes? 3rd Annual EuroQol Academy meeting, March 5-7, 2018, Budapest, Hungary (Poster Presentation).

Paulden M. The use of EQ-5D in economic evaluations – APERSU webinar series, offered on May 16, 2018 (Webinar).

Al Sayah F. The clinical utility of EQ-5D in primary care settings – APERSU webinar series, offered on June 27, 2018 (Webinar).

Upcoming Events

APERSU Webinar Series

Presenter: Fatima Al Sayah

June 27, 2018

12:00 pm to 1:00 pm

To Register, please email:

4th Annual APERSU End-User Meeting

October 11 and 12, 2018

Varscona Hotel on Whyte

8208 - 106 Street

Edmonton, AB T6E 6R9

Our Contact Information:
University of Alberta
2-040 Li Ka Shing CHRI
Edmonton, Alberta, Canada
Phone: 780-248-1010

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